Fifty million people have dementia worldwide, including 5.8 million in the US. Most are cared for in the community by informal family caregivers.  However, formal care delivery is fragmented, inefficient and uncoordinated, resulting in excess unmet care needs, avoidable complications, and greater costs.    Evidence-based approaches to dementia care that bridge medical, social supportive care services must be an international public health priority.  

Trained MIND at Home Memory Care Coordinators working with a clinical team create a care plan based on a patient and caregiver-centered, multi-dimensional in-home assessment.  MIND at Home links individuals and caregivers with community-based agencies, resources, medical and mental health providers right in their own homes. The Memory Care Coordinator helps the person with dementia and caregiver follow through with needs-specific recommendations and works with clinicians to tailor the plan to meet their changing needs over the course of the illness.


THE SOLUTION:                              MIND AT HOME


Persons with cognitive disorders receiving the MIND program had:

  • A delay in time to transition from home or death
  • Reduced risk of transition
  • Improved quality of life
  • Reduced unmet patient care needs

Caregivers receiving the MIND program had:

  • Time savings (i.e. fewer average hours per week with PT)
  • Reduced perceived caregiver burden

Preliminary Medicaid Spending patterns based on recently completed MIND at Home studies:

  • MIND participants' spending DECREASED compared to propensity matched controls (43% vs 57% total)
  • Long Term Care spending increased 46% for controls compared to 48% in MIND participants
  • Inpatient spending increased 14% for controls and 9% for MIND participants 
  • MIND participants had decreased spending for ED/Outpatient visits compared to controls

Samus et al., 2014, Amer J Geriatri Psychiatry; Tanner et al, 2014, Amer J Geriatri Psychiatry

Quotes from Caregivers who experienced MIND at Home first hand:

"I am happy to have someone to turn to when I have questions."

"It helps me not to feel so alone in my caregiving problems. Just the acknowledgement of my problems and the attempt to get help for them is a great morale booster. I thought meeting twice with a psychiatrist was a super idea. She was most helpful."

"It is very reassuring to have visits with the Care Coordinator. Is is such a blessing to know someone understands and cares and would take all this time to help navigate uncharted territories. Our family is very thankful indeed."

"The program creates "an awareness" of symptoms for the dementia patient that I need in managing my home environment in caring for my husband. The program makes me feel that someone "cares" about me as the caregiver and about my husband who has Alzheimer's."

"The time and focus given to a client and/or study partner to make sure they fully understand the and why it's about any problem they are enlightening us on. They show that they really are with us to help us in the very complex and emotional situation we are faced with each day!"

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